Ehlers Danlos SyndromeSubmited By Faris Hussain
ABC featured Olivia Court who was born with severe form of Ehlers Danlos Syndrome, wherein she spent the first years of her life unable to run, jump, or even walk, but thanks to a revolutionary ’second skin’ suit, the 3-year-old British toddler can now run and play like other kids her age.
What is Ehlers Danlos Syndrome or EDS? It is a rare genetic disorder that causes joints to be hyper-flexible — so flexible that hips and knees would regularly, painfully dislocate when one tried to walk. EDS affects the body’s ability to build collagen. While most people associate collagen with youthful-looking skin, these naturally occurring proteins are also essential for building ligaments, arteries, and other body structures.
Collagen is the mortar that holds your cells together, and when it is lacking, those with Ehlers-Danlos Syndrome suffer from overly-mobile joints, super stretchy, paper-thin skin, easy ligament tears and ruptures in their internal organs and blood vessels.
However, when wearing a revolutionary custom-made lycra suit, Olivia’s spine and joints are supported enough to prevent dislocation. Her doctors are quoted in the U.K. press as saying them hope the suit will allow her muscles to grow strong enough to one day support her joints on their own.
Lynn Sanders (photo above),52, founder of the Ehlers-Danlos Syndrome network C.A.R.E.S., Inc. in Wisconsin, also suffers from a similar form of Olivia’s disorder, known as hypermobility EDS.